End Of Life Care


Thursday 29th March 2012, Guoman Charing Cross Hotel - London, 09:00 - 16:40

Improving End of Life Care: Ensuring Dignity, Care and Respect

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Overview

In England an estimated 500, 000 people die each year. To ensure all people are cared for with dignity and respect, it is imperative that the government continues to build on the improvements made in the 2008 End of Life Care Strategy.

The End of Life Care Strategy: Third Annual Report, published in 2011, highlighted the need for improved and increased community-based services in the face of constrained budgets. Additionally, the independent Palliative Care Funding Review, published in July 2011, recommended the introduction of the first ever funding structure for palliative care in England, which could save the NHS £180 million a year. By 2030 an estimated 90,000 more people than at present will be dying in institutions, emphasising a definite need for a more efficient and cost effective service delivery.

In addition, the Health and Social Care Bill (January 2011) aims to strengthen public health and deliver world-class healthcare, with a commitment to focusing on groups such as those receiving palliative care. Moreover, 'Route to Success: The Key Contribution of Nursing to End of Life Care,' published in July 2011, underlines the pivotal role of nurses in end of life care in improving both the commissioning and delivery of services. This practical blueprint outlines the actions nurses need to take at each stage of the end of life care pathway, ranging from early discussions with the individual and family, through to advance care planning and assessment, co-ordination of care, care during the final days of life and care after death.


Agenda

This essential forum will enable delegates to develop better end of life care provisions in line with the government’s renewed commitment to improving palliative care, as outlined in the Operating Framework for the NHS in England 2012/13 (published in November 2011). Practical sessions will examine the range of available support services, the benefits of service integration and strategies to boost efficiency and improve care quality.

09:00 Registration and Coffee
09:30 Chair’s Welcome Address
Professor Jane Seymour, Sue Ryder Care Professor of Palliative and End of Life Studies, University of Nottingham (CONFIRMED)
09:40

Morning Keynote: Providing Effective End of Life Care – Ensuring Dignity, Respect and Care

  • Building on the improvements made after the End of Life Care Strategy
  • End of life care – What are the next steps?
  • Creating a patient-centred focus with effective outcomes
  • Improving care through involving people in commissioning, designing and providing end of life care
  • Meeting the growing need for palliative care in the UK
  • The role of the carer in palliative care provisions
  • The growing role of care homes and hospices
  • Working alongside the Public Health England Strategy
  • Measuring the impact of the 2011 Health and Social Care Bill


Claire Henry, National Programme Director, National End of Life Care Programme(CONFIRMED)

10:00

Dignity, Care and Respect: The Hospice Contribution

  • Working to improve end of life care for patients with specific needs
  • Ensuring all staff working within a care setting are adequately trained
  • Providing funding and provision of education and training
  • Encouraging a better integration of services
  • Offering increased support and respite services for carers
  • Aiding the transition from a care home to a hospice
  • Maintaining a continued high level of care and support for patients

Heather Richardson, National Clinical Lead, Help the Hospices (CONFIRMED)

10:20

Advance Care Planning - Ensuring a Proactive and Co-ordinated Response

  • Advance care planning and the Mental Capacity Act
  • The nurses role in exploring the best options for every individual patient
  • Helping people to plan ahead for their care and treatment should they lose the capacity to make the decision for themselves
  • Making decisions in regards to treatment refusal
  • The difference between general planning and those issues that need to be prepared in advance
  • Complex decision making for advance care planning and how nurses can help
  • Ensuring all nurses are trained to confidently help patients to develop a care plan


Olwen Minford, Member of the Pain and Palliative Care Forum Steering Committee, Royal College of Nursing (CONFIRMED)

10:40 Question and Answer Session
11:00 Coffee and Networking
11:20

Case Study: Providing Multi-Disciplinary Care For Patients and Their Carers

  • Helping people to live their lives to the full and improve their quality of life
  • Working within a multi-disciplinary team to provide optimum care
  • Supporting the carers to manage hard to control symptoms
  • Encouraging activities and exercise as part of a care plan
  • Creative and complimentary therapies to improve care
  • Supporting and developing staff who work within palliative care
  • Building and improving relationships with carers

Liz Webb, Palliative Care Modern Matron, Cambridgeshire Community Services NHS Trust (CONFIRMED)

11:40

Supporting Carers Through End of Life Care

  • The central role of family carers in enabling patients to be cared for and die at home
  • The impact of care giving on carers
  • Carers’ dual position as co-workers and clients
  • What carers’ support needs are when providing care at home and how these may be assessed


Dr Gunn Grande, Professor of Palliative Care, School of Nursing, Midwifery & Social Work, University of Manchester (CONFIRMED)

12:00

Delivering Hospice Care Within the Home: The Farleigh Hospice Outreach Project

  • Providing effective hospice care in the home setting
  • Developing quality services for all patients according to their wishes
  • Maximising the resources available for palliative care within the community
  • Ensuring hard to reach locations receive quality palliative care
  • Improving the efficiency of end of life care through mobile services
  • Cost effective care alternatives


Ann Smits, Head of Patient Care, Farleigh Hospice (CONFIRMED)

12:20 Question and Answer Session
12:40 Lunch and Networking
13:40

Afternoon Keynote: Funding for Palliative Care - Ensuring the Right Support for Everyone

  • The impact of the 2011 Palliative Care Funding Review
  • Creating a fair and transparent funding system
  • The introduction of the first ever funding structure for palliative care in England which could save the NHS £180 million a year
  • Funding to support families and carers through this troubling time
  • Funding for clinical and social support services
  • Securing equal access to care packages
  • Ensuring financial support for hospices in establishing the highest level of care


Professor Sir Alan Craft, Co-Author, Palliative Care Funding Review and Emeritus Professor of Child Health, Newcastle University (CONFIRMED)

14:00

Bereavement Services: An Integral Part of End of Life Care

  • Responding to those who are bereaved and the long term health impact this can have
  • Commissioning and quality outcomes of bereavement care
  • Bereavement support as an integral feature of end of life care

Debbie Kerslake, Chief Executive, Cruse Bereavement (CONFIRMED)

14:20

Improving End of Life Care Through Providing Positive Care Environments

  • Funding avenues for improving environment and design in care homes and hospices
  • Enabling local teams to work in partnerships with service users to improve their environment
  • Supporting relatives are the bereaved through building positive care environments
  • Ensuring staff are trained to enhance the care environment
  • The different ways of involving design and environment into the care programme

Hedley Finn, Director - Enhancing the Healing Environment Programme, The Kings Fund (CONFIRMED)

14:40 Question and Answer Session
15:00 Coffee and Networking
15:20

Spiritual Care: Tying Up Loose Ends and Communicating What’s Important

  • The place of spiritual support
  • Not just for the religious
  • Spiritual assessments and how to use them
  • Guidelines for practitioners
  • Caring for people of diverse faiths

Steve Barnes, President, Association of Hospice & Palliative Care Chaplains (CONFIRMED)

15:40

Case Study: Admiral Nursing- Providing Palliative and End of Life Care For People with Dementia and Their Carers

  • Helping families affected by dementia to live their lives to the full and improve their quality of life
  • Working collaboratively with others to provide optimum care
  • Supporting palliative and end of life care for people with dementia
  • Contribution to research


Karen Harrison Dening, Head of Admiral Nursing, Dementia UK (CONFIRMED)

16:00

Closing Keynote: Achieving the Highest Standard of Care

  • Meeting the required standards of care and welfare in the UK
  • Encouraging better access to top-quality palliative care
  • Investigating poor quality care and making recommendations for improvement
  • Improving the support and training given to carers
  • The importance of experienced staff in end of life care
  • Achieving the highest standard of care within the care home
  • Ensuring care services meet their responsibilities under financial constraint and reform

Alan Rosenbach, Special Policy Lead, Care Quality Commission (CONFIRMED)

16:20 Question and Answer Session
16:40 Chair's Summary and Close

*programme subject to change without notice

Audience

Delegates attending this forum will include PCT's, NHS, health authorities, central and local government, education, social care and business sectors specifically; commissioning directors, social care directors, heads of PCT’s, directors of public health, health and wellbeing mangers, chief nurses, nurses, GP’s, hospice managers, heads of health charities, heads of palliative care, bereavement councillors, end of life care managers, heads of services, clinical directors, heads of nurses, heads of service quality and occupational health managers.


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