health & social care

4th Annual Learning Disabilities Forum

health & social care

08:45 - 16:00

Wednesday 30 January 2019

Hallam Conference Centre, Central London

This Forum provides attendees with the opportunity to discuss the latest policies and strategies taken to improve personalised care and independent living for people with learning disabilities. Participants will also hear from leading organisations and best practice case studies on the latest initiatives to improve care within the community and support independent living for people with learning disabilities.


This Forum will bring together Sector Leaders from Health, Voluntary and Local Government sectors, including:

  • Clinical Directors
  • Chief Executives
  • Learning Disability Development Leads
  • Directors of Support and Care
  • Directors of Transforming Care
  • Service Directors and Co-ordinators
  • Operational and Team Managers for Learning Disabilities
  • Heads and Directors of Operations
  • Clinical Leads and Physical Health Leads
  • Directors of Nursing and Directors of Adult Social Care Transformation
  • Project Managers
Key Speakers Confirmed:
  • Jonathan Senker, Chair, Guideline Committee on Services for People with Learning Disabilities and Behaviour that Challenges, National Institute for Health and Care Excellence (NICE) and Chief Executive, Voiceability
  • Dr Ashok Roy OBE, Clinical Lead for Learning Disabilities, Health Education England
  • Gary Bourlet, Co-Founder, Learning Disability England
  • Anne Webster, Clinical Lead, Improving Health & Quality, Learning Disability Programme, NHS England
View the agenda and additional speakers


Registration, Refreshments and Networking


Chair’s Welcome Address

Professor Julie Beadle-Brown, Professor in Intellectual and Developmental Disabilities at The Tizard Centre, University of Kent (CONFIRMED)


Special Keynote: Improving Care for People with Learning Disabilities

  • Receiving an update on the progress of the learning disability programme work, including the Transforming Care programme
  • Updating on the LeDeR process and discussing how learnings are being put into action across the NHS
  • Considering the long-term plan for the next five to ten years in terms of transforming care and outcomes for people with learning disabilities and autism

Anne Webster, Clinical Lead, Improving Health & Quality, Learning Disability Programme, NHS England (CONFIRMED)


Morning Keynote: Supporting Workforce Development to Deliver New Models of Care

  • Supporting the 48 TCPs developed across England as part of NHS England’s ‘Building the Right Support’ national plan, enabling the development of TCP Workforce Plans
  • Defining the workforce and developing bespoke training strategies to promote understanding about learning disabilities, helping individuals access the services they need
  • Developing a comprehensive strategy to improve numbers and strengthen recruitment and retention
  • Designing and implementing competency frameworks to improve skills levels of frontline care and support staff to improve outcomes for people with a learning disability
  • Transforming the workforce to deliver the NHS’ 10 Year Plan

Dr Ashok Roy OBE, Clinical Lead for Learning Disabilities, Health Education England (CONFIRMED)


Questions and Answers Session


Refreshments and Networking


Case Study: Providing a Strengthened Approach to Care through Partnership with Voluntary Services

  • Examining the outcomes of the 2018 report on the VODG Provider Taskforce London Demonstrator project, commissioned by NHS England
  • Considering the methodology and efficacy of the London Demonstrator to develop appropriate support options for 27 people to enable their discharge from inpatient settings
  • Identifying solutions to whole-system issues encountered in the project, involving commissioners, funders and providers, in delaying discharge and developing support plans
  • Identifying learning in relation to challenges and barriers to successful community support as well as actions to enable positive change

Jane Evans, Head of Membership and Engagement, Voluntary Organisations Disability Group (VODG) (CONFIRMED)


Case Study: Taking a Preventative Community Approach to Supporting People with Learning Disabilities with Behaviour that Challenges

  • Providing a Learning Disability Intensive Support Service that supports children and young adults in crisis to prevent hospital admissions by offering support in the home and helping people to move out of hospitals and back to Gloucestershire
  • Delivering a Positive Behavioural Support Service for young adults with learning disabilities who display behaviour that challenges, taking a preventative and early-intervention approach
  • Working proactively to support timely discharges of individuals to reduce time in hospital and aid rehabilitation along with providing support and guidance to families
  • Supporting transitions of individuals from out of the area to return to the local area and providing a range of training including Communication, Positive Behavioural Support and Management

Kim Forey, Senior Responsible Officer, Gloucestershire Transformation Partnership (invited)


Case Study: Delivering Personalised Support and Independent Living across Housing Services

  • Learning from Service Users on their experiences at Sanctuary Supported Living, how their specific needs are met and decisions reached jointly
  • Working in partnership with local authority commissioning teams, social services, NHS teams and key stakeholders to develop personalised services that meet both individual and local needs
  • Taking a holistic approach to supporting individual needs, working closely with other care providers and community services to develop an individualised care plan and monitor progress
  • Collaborating with staff and Service Users to deliver a person-centred, tailored support plan based on the ‘Life Star’ model, which covers 10 key areas of support to measure change and enable positive outcomes
  • Exploring how Sanctuary Supported Living supports over 6,000 people a year across England, with tailored packages of local support and a turnover exceeding £669 million

Sarah Clarke-Kuehn, Operations Director, Sanctuary Supported Living (invited)


Questions and Answers Session


Lunch and Networking


Special Keynote: Exploring the NICE Guidelines on Service Design for People with Learning Disabilities and Behaviour that Challenges

  • Discussing the NICE guideline, ‘Learning disabilities and behaviour that challenges: service design and delivery ’, published in March 2018
  • Detailing recommendations for commissioning services which help people to lead a full life
  • Recommending ways of improving support for families
  • Designing and providing community-based support
  • Developing housing options based on individual needs and the best available evidence
  • Keeping the individual at the centre of co-ordinating, planning and providing their support

Jonathan Senker, Chief Executive, Voiceability, and Chair, Guideline Committee on Services for People with Learning Disabilities and Behaviour that Challenges, NICE (CONFIRMED)


Afternoon Keynote: Improving Care for People with Learning Disabilities through the Driving Up Quality Code

  • Encouraging all providers to take responsibility for improving service provision and going beyond minimum standards through the Driving Up Quality Code
  • Discussing the various positive outcomes achieved through signing up to the Code, from improving transparency and accountability to sharing best practice and demonstrating a public commitment
  • Sharing the five key features of the Driving Up Quality Code, for instance ensuring support is person-focused, support focuses on quality of life and ensures organisational culture is accommodating for learning disabilities
  • Outlining how the Code compliments other forms of disability standards such as the CQC National Minimum Standards and how this code can improve service and care delivery
  • Helping organisations to improve their practices through the Self-Assessment Guide and ensuring accountability through commissioners, families, staff and Service User experiences
  • Emphasising the importance of shared learning and working with people and families to build on progress made in terms of openness and transparency

Gary Bourlet, Co-Founder, Learning Disability England (CONFIRMED)


Questions and Answers Session


Refreshments and Networking


Case Study: Improving Pathway Services to Enable Individuals to Live Independent Lives

  • Developing the Kent Pathways Service, which assists adults with learning disabilities to live more independently, operating across the whole of Kent
  • Creating a single pathway transition service for individual children who have permanent disabilities as they move towards adulthood and improving service alignment for adults and children
  • Outlining the challenges faced and lessons learned from delivering the service, such as correctly assessing needs and providing an appropriate level of support for between 1 and 12 weeks
  • Creating an integrated community learning disability team to support individuals with complex needs and creating a personalised crisis response plan
  • Ensuring people with learning disabilities live in the right accommodation with the right level of support through the ‘Your Life – Your Home’ programme and reviewing 1,200 people to improve independence through better residential care
  • Reflecting on the work done to achieve savings across the council of £11.9 million from 2011-16

Penny Southern, Director for Disabled Children, Adult Learning Disability and Mental Health, Kent County Council (invited)


Case Study: Supporting People with Learning Disabilities to Integrate into Local Communities

  • Hearing from an Expert by Experience about their involvement in CTRs, and the best ways to provide effective support
  • Exploring how local authorities can support individuals to use their strengths, become active citizens and grow their independence
  • Enabling professionals from local authorities to identify what is needed locally and how to help individuals establish new connections within their community
  • Ensuring that co-production is working, for instance ensuring local areas commit to employing people with learning difficulties
  • Reflecting on what more can be done to improve services for adults with learning disabilities

Shaun Picken, Expert by Experience and Consultant, My Life My Choice (CONFIRMED)


Closing Keynote: Sharing the Key Learnings from NHS Digital’s Health and Care of People with Learning Disabilities 2018

  • Exploring the key challenges encountered when collecting data about the health and care of people with learning disabilities
  • Discovering the stories told by the data collected for the most recent Health and Care of people with Learning Disabilities publication
  • Discussing the key messages from the publication, and considering what measures health and care providers can take to ensure that people with learning disabilities get the best possible care

Robert Danks, Senior Information Analyst, Primary Care Domain, NHS Digital (CONFIRMED)


Questions and Answers Session


Chair’s Summary and Close

*programme subject to change

People with a learning disability are three times more likely to die from causes that could be avoided by adequate healthcare provision. The 2018 Learning from Deaths Report released by the University of Bristol revealed that life expectancy at birth for people with learning disabilities was 19.7 years lower than for those without. Given that 1.5 million people are registered with a learning disability in Britain, the profound – and preventable – health inequalities that these figures highlight are entirely unacceptable.

By March 2019, it is expected that the necessary support should be in place for health and social care services, according to the national service model ‘Building the Right Support’, created by NHS England in 2015 in collaboration with the Local Government Association (LGA), the Association of Directors of Adult Social Services (ADASS) and key stakeholders, for commissioners of these services. NHS England has funded an extra £1.4 million to ensure that rigorous reviews of services are completed across all local authorities and CCGs, but more needs to be done to improve quality of care both in and out of hospital to ensure that the 1.5 million people with learning disabilities and/or autism live longer, healthier lives.

NHS trusts, Transforming Care Partnerships (TCPs) and CCGs urgently need to transform care and improve service provision for people with learning disabilities if they wish to be compliant with the NHS England service model. People with learning disabilities need to be involved in deciding the direction of their own care and co-producing their care plans with a variety of stakeholders, including their family and healthcare professionals. As well as this, local authorities, NHS providers and charities must work in partnership to raise awareness and ensure the highest possible quality of life for those living with learning disabilities and/or autism.

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